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ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.
News
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Coming next: Rare Disease Day
February 15th 2012
February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organising awareness-raising activities converging around the slogan “Rare but strong together”.
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Combination of EMA-binding and AGLT tests shows the highest diagnostic power for hereditary spherocytosis
January 24th 2012
In hereditary spherocytosis, as in many other rare diseases, one of the challenges is developing a reliable diagnostic tool. The team from the Foundation IRCCS Ca' Granda Ospedale Maggiore Policlinico (Milan), led by Prof. Alberto Zanella, has undergone a performance comparison of several tests to determine which of them is the most useful diagnostic method.
Agenda
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Rare Disease Day: Research means advancement
February 28th 2012
Madrid, Spain
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First EURORDIS fundraising Gala Dinner
Frebruary 29th 2012
Brussels, Belgium
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Enerca is a project in the Health Programme 2008 of the European Commission.