ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.
March 18, 2015
The EURORDIS Awards recognize the contribution of patients’ associations, caregivers, volunteers, scientifics, media and companies that contribute day-by-day, hand-in-hand to reducing the impact of rare diseases on people’s lives.
March 4, 2015
State of the art scientific researches to achieve the cure for beta thalassaemia are closer than ever to reach their goals. The U.S. Food and Drug Administration (FDA) supports two potential definitive treatments for beta thalassaemia that stem from the companies Bluebird bio and Sangamo BioSciences.
April 16-17, 2015
April 16-20, 2015