ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.
October 3, 2014
The present implementation report measures both achievements and future strategies to continue improving rare disease research and treatment, as well as the quality of life of patients and their families.
September 30, 2014
The ITHANET Portal is a website dedicated to thalassaemia. It recently announced the publication of an article describing the IthaGenes database and the companion IthaMaps tool in the open-access journal PLoS ONE.
7-9 November, 2014
November 7-9, 2014