An application for the ERN in Rare Hematological diseases (ERN-RHD) is being developed led by ENERCA coordinator, Prof Joan Lluis Vives Corrons.
Network disease coverage will be expanded by including Rare Hematological diseases in thematic sub-nets.
JOIN THE ERN-RHD (here)
May 30, 2016
The ENERCA Telemedicine platform facilitates remote diagnosis orientation of complex cases by building a bridge among health professionals in distant locations and experts in rare anaemias leading to a faster and more accurate diagnosis and consequently, to a better care of the patient.
May 17, 2016
EURORDIS has developed ePAGs for each ERN disease grouping. ePAGs bring together elected patient representatives and affiliated organisations who will ensure that the patient voice is heard throughout the ERN decision-making processes and a democratic process of patient representation.