ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.
April 2, 2014
The coordinator of ENERCA, Prof. Joan Lluís Vives Corrons, was invited to explain the organization model designed for the fourth phase of the project, e-ENERCA. The debate celebrated in Brussels last March 25 2014 focused on IT tools and networking elements.
March 17, 2014
All three countries presented have recently presented their Plans and Strategies in the fight against rare diseases. This kind of documents organizing the fight against rare diseases in European countries are necessary to reach a more harmonized and effective clinical care.