ENERCA is co-funded by the European Commission (EC) through its Public Health and Consumer Protection Directorate (DG SANCO), PHEA programme.
Welcome to the
ENERCA Website, where we are collecting the information you need to know about rare and congenital anaemias. The contents of this site are being compiled with the assistance of the network participants, without whom it would not be possible. The site intends to become a meeting point for the healthcare society wherever rare anaemias show up or are even suspected.
The website is particularly addressed to experts in these illnesses, health care professionals, research scientists, laboratory technicians and others who deal with the problems of recognising and diagnosing diseases related to blood health. The Extranet part of this page has technical information for experts and it is our desire that the Forums will become a meeting point for professionals to provide and receive support for their task of caring for patients. If you are a professional you can register now .
The public part of the page is addressed to patients who suffer from rare anaemias and their families and care providers. You will find descriptions of a long list of anaemias in a language that should be easy enough to understand. If this is not the case, do not hesitate to get in touch with us so that we can improve them and help you. There is a list of Centres of Reference for different countries and illnesses so that you can find one near to where you live. Again, if you know of one that is not listed - do let us know about it.
If you cannot find what you are looking for on our page, please look at the "links" page where you should be able to get to an organisation that does satisfy your needs. If you would like to know more about the benefits of ENERCA go to “ENERCA Services” in the menu on the left.
Please note that the information provided on this site is not intended to replace your physician or haematologist, neither is it intended to provide a diagnosis or recommend treatment that can only be done by a qualified doctor.
While ENERCA takes care to ensure that the information provided here is accurate and up to date, we cannot accept any responsibility for damage caused by the wrong use of the information here provided. The users accessing the site is responsible for the use they make of the information contained herein and ENERCA will not be held responsible for damage, liability, loss, cost of any kind arising out of or related to the use of such information and particularly for the content of any external web page linked to or from this one.
The host server for the website is located in Spain and the applicable law in respect of the Website is subject to the Spanish law and courts.
The information contained on this web site may be reproduced on paper, electronic support or other means for personal, non-commercial use and recopy to individual third parties for their personal information or to organisations for educational use, as long as you acknowledge this website as the source of the material, making specific mention of this on the copies and informing third parties to do likewise.
Users of this web site may not copy, republish, lend, post on servers, transmit or redistribute any information on this site to third parties for commercial purposes or for compensation of any kind without prior written permission from ENERCA.
Some information or materials on this site may contain references to materials from third parties for which copyright must be honoured.