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ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.

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  • Join the 6th European Symposium on Rare Anaemias this November

    June 15, 2015

    6th European Symposium on Rare Anaemias - 1st Dutch-Belgian meeting for patients and health professionals will be held in Amsterdam (The Netherlands) next 21st and 22nd November 2015.  Inscriptions are already opened! We are willing to see you this November in Amsterdam!

  • “Rare Disease Registries in Europe”, an updated list of the current situation in the European Union

    June 12, 2015

    Orphanet has recently published “Rare disease Registries in Europe”, an updated document that collects all the information regarding specific rare disease or group of diseases in the European Union or other participants in the consortium Orphanet countries. A pan-European interoperable electronic Registry for major Rare Anaemias and other epidemiological health records is currently being developed by ENERCA.

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