European Network for Rare and Congenital Anaemias

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ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.

News

Hydroxyurea is not as effective as transfusions in preventing recurrent strokes in children with sickle cell anemia

May 13th 2012

A previous study (STOP 1) demonstrated the efficacy of transfusion in preventing the occurrence of stroke in sickle cell anemia children. Unfortunately, it does not abolish completely the risk of recurrent strokes. There is an urgent need to find a more effective therapy to prevent recurrent strokes in sickle cell anemia. According to a recent study published in Blood, commented by Dr. Mariane de Montalembert, hydroxyurea may have some benefits in certain patients but it is not be the pursued alternative treatment.
ENERCA video about haemoglobinopathies and children

April 25th 2012

Haemoglobinopathies are inherited illnesses that can pass from parents to their children. ENERCA partners have developed a video to promote prenatal prevention of haemoglobinopathies. Its message is: Get informed!