ENERCA is co-funded by the European Commission (EC) through its Public Health and Consumer Protection Directorate (DG SANCO), PHEA programme.
Welcome to the
ENERCA Website, where we are collecting the information you need to know about rare and congenital anaemias. The contents of this site are being compiled with the assistance of the network participants, without whom it would not be possible. The site intends to become a meeting point for the healthcare society wherever rare anaemias show up or are even suspected.
The website is particularly addressed to experts in these illnesses, health care professionals, research scientists, laboratory technicians and others who deal with the problems of recognising and diagnosing diseases related to blood health. The Extranet part of this page has technical information for experts and it is our desire that the Forums will become a meeting point for professionals to provide and receive support for their task of caring for patients. If you are a professional you can register now .
The public part of the page is addressed to patients who suffer from rare anaemias and their families and care providers. You will find descriptions of a long list of anaemias in a language that should be easy enough to understand. If this is not the case, do not hesitate to get in touch with us so that we can improve them and help you. There is a list of Centres of Reference for different countries and illnesses so that you can find one near to where you live. Again, if you know of one that is not listed - do let us know about it.
If you cannot find what you are looking for on our page, please look at the "links" page where you should be able to get to an organisation that does satisfy your needs. If you would like to know more about the benefits of ENERCA go to “ENERCA Services” in the menu on the left.
Please note that the information provided on this site is not intended to replace your physician or haematologist, neither is it intended to provide a diagnosis or recommend treatment that can only be done by a qualified doctor.