ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.
May 8, 2015
As every year, Thalassaemia International Federation (TIF) celebrates these special day focusing on different topics. 2015 is the year of "Enhancing partnership towards patient-centred health systems: good health adds life to years!" aiming to achieve a change in healthcare system by becoming more patient-centred.
April 7, 2015
On August 2014, orphan designation was granted by the European Commission to Centro de Investigaciones Energéticas, Medioambientales y Tecnológicas-Centro de Investigación Biomédica en Red de Enfermedades Raras and Instituo de Investigación Sanitaria-Fundación Jiménez Díaz (CIEMAT/CIBERER/IIS-FJD), Spain, for the “lentiviral vector containing the human liver and erythroid pyruvate kinase (PKLR) gene” for the treatment of pyruvate kinase deficiency.
May 28-29, 2015
June 6-9, 2015