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ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.

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  • Rare Disease Day, February 28. Get involved!

    January 23, 2015

    Every last day of February, Rare Disease Day takes place all over the world. Since first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people with the common objective of raising awareness about rare diseases among population, specialists and media.

  • EURORDIS promotes the creation of European Reference Networks to cover every rare disease within the European Union

    January 23, 2015

    When it comes to rare diseases, having access to experts in the field that provide specific treatments can become a real challenge. With the idea of sharing the knowledge between healthcare professionals across borders in order to have the most recent and reliable information, European Reference Networks are born.

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