Patient associations

Associations list

AIEPN onlus - Italian Association PNH

39 02 55033439
c/o Foundation IRCCS Ca' Granda Ospedale Maggiore Policlinico. 20122 Milan • ITALY
Contact Person:
Sergio Ferini Strambi Presidente

The founders of this association are a group of people from all over Italy, which consists of patients, family members and hematologists who have agreed to meet and deal with the problem of this rare blood disease. We want to help those who live with paroxysmal nocturnal hemoglobinuria (PNH) to stop feeling alone. We do it by trying to solve major problems, interfacing with institutions on the subject, encouraging as much as possible good and uniform health care standards across the country and, finally, promoting research.


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