Members & centers

Members & Centers list

Centro Nazionale Malattie Rare

06 4990 4017
06 4990 4017
Via Giano della Bella, 34. 00161 Roma • ITALY

The National Rare Diseases Register identifies the number of cases and their distribution on the national territory, being the central connection of the national clinical-epidemiological network. The National Orphan Drug Network aims at activating a surveillance system for all orphan drugs reimbursed by the National Health System. For further information, visit the specific sections of the National Rare Diseases Network and of the National Orphan Drugs Network.


Dr. Domenica Taruscio
Manager of technological platform and registry

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Co-funded by the Health Programme of the European Union.