3rd European Symposium on Rare Anaemias

1st Spanish Thalassaemia Meeting For Patients And Health Professionals

2010 November, 19th - 20th


The 3rd European Symposium on Rare Anaemias is an activity of the ENERCA project which aims to inform colleagues and stimulate interest on the subject of congenital and rare anaemias which constitutes today a health care concern of significant proportions. As is the case with all rare diseases, specialised services need to be made available in expert centres where relevant experience has been gained in order to serve patient needs, both in diagnosis and case management. In dealing with these anaemias, the first requirement is the dissemination of information to colleagues and patients, as well as to patients’ families, with the aim of programming service development. At the core of ENERCA policies, as in the Thalassaemia International Federation (TIF) and the Spanish group ALHETA, patients are always the priority. In this respect, and specifically in the context of the 3rd European Symposium on Rare Anaemias, ENERCA, TIF and ALHETA, have collaborated in setting up the first Spanish Symposium of Thalassaemia patients and professionals, organized this time in Madrid, where an interactive workshop has been scheduled with patient panellists and doctors, focused not only on clinical management but also on prevention and social action for thalassaemia and haemoglobinopathies.

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Epidemiology and prevention of haemoglobinopathies

  • M. Angastiniotis: Prevention of thalassaemia a challenge for increasing patient’s quality of life
    Abstract (58 Kb) | Presentation (395 Kb)
  • B. Gulbis: Haemoglobinopathies. Current situation of Genetic Diagnosis and Counselling
    Abstract (29 Kb) | Presentation (826 Kb)
  • A. Villegas: Steps needed to move forward in Spain. A professional point of view
    Abstract (32 Kb) | Presentation (796 Kb)
  • A. Cerrato: Steps needed to move forward in Spain. A patient point of view
    Abstract (58 Kb) | Presentation (688 Kb)

Laboratory diagnosis of rare anaemias

Clinical management of haemoglobinopathies

Haemoglobinopathies and rare anaemias

New scientific developments

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