Summary report of the 6th Meeting of the EUCERD

The European Union Committee of Experts on Rare Diseases (EUCERD) met for the sixth time on 14-15 November 2012

January 22nd 2013

The two-day meeting was the opportunity to tackle a number of priority subjects, including the elaboration of the EUCERD Recommendations on European Reference Networks for Rare Diseases, and the proposal from the European Commission to create an EU platform for rare disease registration. ENERCA participated in the sessions presenting its 10 years of experience.

The meeting was preceded by a workshop on rare disease registries, and included other issues such as the EUCERD Joint Action, New Born Screening, the Clinical Added Value of Orphan Medicinal Products (CAVOMP), the International Rare Diseases Research Consortium (IRDiRC) and the Rare Disease Day 2013. The public summary report of the 6th Meeting of the EUCERD is now available online.

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