Become a Friend of the Rare Disease Day

The Rare Disease Day 2013 is fast approaching

January 17th 2013

Rare Disease Day 2013

On 28 February, the entire rare disease community worldwide will converge to raise awareness for rare diseases and the millions of people affected. ENERCA has already signed up as a "Friend of Rare Disease Day“. This initiative has been created to give visibility to those who want to do something to raise awareness for rare diseases. The whole campaign is coordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the National level.

ENERCA is supporting the Rare Diseases Day through its website and encourages all its members to contribute with this transversal initiative. The IDIBAPS - Hospital Clínic of Barcelona, were the coordination office of ENERCA is located, will participate in the diffusion of the initiative through the TVs in the waiting rooms of the center. Patient Organisations, health professionals, researchers, drug developers, and public health authorities having an interest in rare diseases are invited to participate in this year's campaign.

Let’s join efforts to spread the message and register as Friend. It takes only a minute!

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