Second EPIRARE Meeting

May 23, 2013

Brussels, Belgium

Organized by:



MCE Conference Centre (Rue de l’Aqueduc 118, 1050 Brussels)

Among others, the meeting will be the chance to discuss the EUCERD Recommendations on Common Principles and Consensus on Patient Registries and Data Collection for Rare Diseases. It will also be aimed at working on a technical document of possible policy scenarios for rare disease patient registration concerning the direction the proposed European registry platform to be based at the EC’s Joint Research Centre in Ispra could take. 

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