EURORDIS 2nd Multi-stakeholder Symposium on Improving Patient Access to Rare Disease Therapies

February 22-23, 2017

Brussels, Belgium

Organized by:

EURORDIS Rare Diseases Europe


Hotel Le Plaza Brussels
Boulevard Adolphe Max 118 - 126, Brussels, Belgium

The goal of this second symposium is to develop a cooperative process for reaching mutually acceptable solutions that respect all stakeholders, that enhance and sustain trust, and that build mutual understanding of each other’s perspectives and expectations.

The symposium aims to:

  • Recognise stakeholder issues on assessing new treatments, providing patient access, and ensuring affordable and sustainable healthcare;
  • Elicit the important interests of each stakeholder group;
  • Identify current and emerging initiatives and, through them, investigate together reasonable, innovative ways to work collaboratively across stakeholder groups to resolve rare disease patient access issues in an equitable way for each stakeholder and for society as a whole;
  • Pave the way to a fair, inclusive and on-going multi-stakeholder approach with the potential to generate sustainable, affordable and actionable improvements in patient access to rare disease therapies

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