ECRD 2016 : The European Conference on Rare Diseases & Orphan Products

May 26-28, 2016

Edinburgh, Scotland

Organized by:

Organized by EURORDIS Rare Diseases Europe, co-organized by DIA (Develop Innovate Advance)

The ECRD is the only event which, from its small beginnings, has united all rare disease stakeholders from all European nations- patients and patient representatives, healthcare professionals and researchers, industry, payers, regulators and policy makers alike- in the fight against rare diseases. The ECRD now brings together over 80 speakers and more than 800 participants, covering six themes of content over two days: from the latest research, to developments in new treatments, to innovations in healthcare, social care and support at the European, national and regional levels. New meeting formats to enhance the on-site learning experience will be showcased for the first time in Edinburgh and will include a speed networking session to connect patients, researchers and industry, an open-house “soap box” lunch session, interactive roundtables, audience polling, networking lunches / coffee breaks and dedicated poster sessions.

The focus in 2016 will be on Game Changers in Rare Diseases. We will also be holding pre-conference tutorials, which will ensure that you are equipped to learn as much as possible from the conference.

The conference is structured with both plenary and parallel sessions addressing specific issues. The format is designed to encourage knowledge-sharing and debate, and we have integrated the exchange of real experiences and best practices into the programme. Most importantly, the opportunities to network and cooperate with peers and colleagues stimulates debate, builds awareness, secures continuity of action and avoids us duplicating any efforts where our resources are scarce and collaboration is key. Our thematic approach is also designed to allow us all to learn from each other, and where less advanced regions in a given field can benefit from experience sharing with other areas in Europe and globally.


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