Rare but Real: Talking Rare Diseases

February 24, 2015

Brussels, Belgium

Organized by:

Organized by EURORDIS in cooperation with Radiorg, the Belgian National Alliance of rare disease patient organisations, and with in-kind support from Burson-Marsteller Brussels.

Schedule: 10:30 - 13:00


Residence Palace, Brussels

To mark Rare Disease Day 2015, EURORDIS invites you to join people living with a rare disease and policy makers at a unique face-to-face discussion event, which will include contributions from three patients who have had a ‘Rare but Real’ game-changing influence on policy.

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