EpiRare International Summer School: "Rare Disease and orphan drug registries"

16-20 September 2013

Rome, Italy

Organized by:

EPIRARE (European Platform for Rare Disease Registries)


Italian National Institute of Health – Viale Regina Elena, 299

The course will take the participants through the main concepts and practical steps that must be undertaken in the establishment and management of a rare disease registry to ensure its usefulness, soundness and sustainability.

30 July 2013 - deadline for application submission

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