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European Reference Networks one year anniversary

March 12, 2018

 European Reference Networks (ERNs) have just celebrated the first year anniversary from their beginning of activity with the aim to tackle rare and complex conditions. Using the EU's great pool of knowledge and expertise, by connecting our assets through ERNs can bring concrete benefits to many thousands of patients.

Major European Grant for New Research Program: Solve-RD

February 2, 2018

The Solve-RD research program is a project funded by the EU’s Horizon 2020 that will directly involve the European Reference Networks (ERNs) in order to diagnose currently undiagnosed rare disease patients using the latest in genetic technologies.

Rare Disease Day 2018 is approaching! Show your rare. Show you care.

February 2, 2018

Continuing on from Rare Disease Day 2017, the theme of this year is Research. Rare disease research contributes to the development of diagnostic tools, treatments and cures, as well as improved health and social care for patients and their families. Take part in an interactive face paint social media campaign to raise awareness of rare diseases and show your support for the rare disease community! Show your rare. Show you care.

Rare Anaemia Disorders European Epidemiological Platform (RADeep)

January 15, 2018

The Rare Anaemia Disorders European Epidemiological Platform (RADeep) is currently being implemented as a joint venture conceived in the core of ERN-EuroBloodNet to become an umbrella for both new and already existing European patients’ registries in rare anaemias (RAs). We are very happy to anounce the launch of RADeep website! 

Winners of the EURORDIS Black Pearl Awards 2018!

January 15, 2018

 The EURORDIS Black Pearl Awards are presented to the stars of the rare disease community - patient advocates, organisations, policy makers, scientists, companies and media - for their major achievements and their outstanding commitment to the rare disease cause. There were over 350 nominations, representing 37 different countries worldwide. The recipients of the EURORDIS Black Pearl Awards 2018 have been already announced!

More news



37th World Congress ISH 2018

September 13–17, 2018

Vancouver, Canada

International Society of Hematology (ISH)

EQALM Symposium 2018

October 18-19, 2018

Zagreb, Croatia

The 2018 EQALM symposium and General Assembly will be held in Zagreb, Croatia on 18-19 October, 2018. Futher details will be published when available.

 EQALM (European Organization for External Quality Assurance Providers in Laboratory Medicine)

60th ASH Annual Meeting & Exposition

December 1-4, 2018

San Diego, CA

  Mark your calendar for the world’s most comprehensive hematology event of the year, the 60th ASH Annual Meeting and Exposition in sunny San Diego. The meeting will provide an invaluable educational experience and the opportunity to review thousands of scientific abstracts highlighting updates in the hottest topics in hematology. Network with top minds in the field and a global community of more than 25,000 hematology professionals from every subspecialty.

American Society of Hematology (ASH)

World congress on rare diseases

December 5-7, 2018

Dubai, UAE

 Rare Diseases Congress is giving a worldwide stage to analysts that afford new insights into the concealed rare diseases. This conference will feature a global audience of scientific leaders, academia and health care professionals, and Orphan Drugs experts who are going to discuss today’s emerging treatments and diagnostics. It is designed to provide an educational forum that stimulates clinical, research, government and patient communities to create a coordinated and comprehensive approach for advancing the implementation of research, clinical care, care delivery coordination and other public health interventions critical to improved outcomes in Rare Diseases.

 Conferenceseries LLC Ltd



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