An application for the ERN in Rare Hematological diseases (ERN-RHD) is being developed led by ENERCA coordinator, Prof Joan Lluis Vives Corrons.
Network disease coverage will be expanded by including Rare Hematological diseases in thematic sub-nets.
JOIN THE ERN-RHD (here)
March 24, 2017
Rare Lives project wants to give the 30 million people living with a rare disease in Europe the visibility and strength, raising awareness and attention of the citizenship on rare diseases through the construction of a network which combines the experiences of those living the condition of rare patient and those who are not. Take a look on the journal!
March 15, 2017
After the kick off conference held last 9th and 10th March in Vilnius, a set of dissemination material (flyer, brochure and video) have been prepared by the European Commission with the aim of rising awareness on the meaning, objectives and expected outcomes of the 24 ERNs.
March 27-29, 2017
April 29-30, 2017