Rare Disease Day 2019 is approaching! Show your rare. Show you care.

February 28, 2019

Rare Disease Day is approaching and thousands of events are organised worldwide to celebrate this special day. The theme for Rare Disease Day 2019 is 'Bridging health and social care'. This theme places attention on the importance of bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.

RD-Connect invites ERN members to join the RD-Connect Community

In July 2018 the new RD-Connect Community was launched. This is an international association of individuals and organizations who would like to participate in shaping the rare disease field, promote data sharing and reuse and advance research. Membership is free of charge and open to organisations, research groups and individuals from diverse backgrounds, engaged in rare disease research anywhere in the world. Several ERNs have signed up as members, but you are welcome to register as individual healthcare professionals HCPs and research groups.

WORLD DAY PROGRAM OF RARE DISEASES 2019. VIII WORKSHOP "Investigate is moving forward"

February 28, 2019.

Madrid, Spain

European Red Cell Research Society 22nd Meeting “Red Cell Research on the Mount of Truth”

March 8 - 12, 2019

Monte Verità, Ascona, Switzerland