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Pyruvate Kinase Deficiency Support Group

E-mail:
pyruvatekinasedeficiency@gmail.com
Website:
http://pyruvatekinasedeficiency.com/

Pyruvate Kinase Deficiency Support Group is a worldwide, online based, support group for people and relatives of people with Pyruvate Kinase Deficiency (PKD). We can be reached through our official website http://pyruvatekinasedeficiency.com or through the Facebook group "People with Pyruvate Kinase Deficiency". Both the website and Facebook Group are managed by patients with Pyruvate Kinase Deficiency from different countries (USA, United Kingdom, Sweden, The Netherlands and Belgium). Our objective is to give access to comprehensible information about Pyruvate Kinase Deficiency and everything that accompanies living with this disease, and to provide an open platform where ones experience and knowledge can be shared and discussed.

Diseases

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