4th European Symposium on Rare Anaemias

3rd Bulgarian Symposium of Thalassaemia patients and professionals

The 4th European Symposium on Rare Anaemias is an activity of the ENERCA project which aims to disseminate up-to-date knowledge and increase the public awareness about congenital and rare anaemias. As in other rare diseases, the recognition of expert centres, promotion of best practices and education and training of multidisciplinary health professionals teams are basic in order to serve patient needs, both in diagnosis and case management. Patients are always at the heart of ENERCA policies, like those of the Thalassaemia International Federation (TIF), Thalassaemic’s Organization in Bulgaria (TOB) and the Spanish group ALHETA.

In this respect, and specifically in the context of the 4th European Symposium on Rare Anaemias, the three organisations (ENERCA, TIF and TOB) have collaborated in setting up the 3rd Bulgarian Symposium of Thalassaemia patients and professionals in Sofia, with the scientific support of ENERCA and integrated in the framework of the 4th European Symposium on Rare Anaemias. The program includes an interactive session with patient panellists and doctors, focusing not only on clinical management but also on prevention and social action for thalassaemia and haemoglobinopathies.

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