Training

3rd Pan-European Conference on Haemoglobinopathies & Rare Anaemias

ENERCA Sessions

2012 November 24th - 26th

Limassol (Cyprus)

The 3rd Pan-European Conference on Haemoglobinopathies & Rare Anaemias is an international meeting oriented to all the key players in Haemoglobinopathies & Rare Anaemias, including patients and patient organisations, healthcare professionals, academics, researchers, policy-makers and industry. Organized by the Thalassaemia International Federation (TIF), the Conference joined stakeholders from the 27 Member States of the European Union as well as from other states of the Council of Europe and countries of neighbouring regions.

On addition of being among the event organizers, ENERCA was on the center of attention during two dedicated sessions on October 26th. The debate focused on the role of Experts Centres, cross-border health, the improvement of education and training on rare anaemias, and laboratory diagnosis, epidemiology and screening issues. The ENERCA sessions were sponsored by SEBIA, Novartis and Vienna Lab.

ENERCA: 10 years of experience

(Chair: Joan Lluis Vives-Corrons & María del Mar Mañú Pereira)

Session I

  • Michael Angastiniotis
    ENERCA 3: Experts centres and networking: Why are they important?
    Presentation (715kb)
  • Pilar Nicolás
    Expert centers and cross border health care - The consequences for patient’ rights
    Presentation (701kb)
  • Beatrice Gulbis
    Expert Services for rare anaemias across Europe
    Presentation (3,464kb)
  • Patricia Aguilar-Martinez
    Education and training on rare anaemias: how to improve them?
    Presentation (1,178kb)

Session II

  • Barbara de la Salle
    Laboratory diagnosis of rare anaemias : Why quality assessment is important for patients
    Presentation (2,210kb)
  • Paola Bianchi
    Current diagnostic approach and screening methods for hereditary spherocytosis
    Presentation (1,891kb)(1,891kb)
  • Richard Van Wijk (presented by Paola Bianchi)
    Recent advances in the diagnosis and epidemiology of RBC enzymopathies in Europe
    Presentation (1,030kb)
  • Herman Heimpel (presented by Joan Lluis Vives-Corrons)
    Micro-mapping of very rare anaemias in Europe : the model of CDA
    Presentation (633kb)

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