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Interactive Poster Sessions from the ESH Annual Meeting 2013

Investigators involved in groundbreaking researches present their findings

February, 2014. In this ESH webcast, investigators involved in groundbreaking studies about treatment regimens to reduce iron overload present their research findings and discuss the implications of their work for clinical practice.

Haemoglobinopathies on the Move: Is Europe ready?

A report to understand the situation of haemoglobinopathies in Europe

February, 2014. The European Union has made remarkable progress in the area of rare diseases, but there is still much pending work. The present document analyses the situation country by country, presenting a specific fact sheet for each European country. This report was developed by a group of experts from ENERCA and the TIF, in collaboration with the International Organization for Migration (IOM) and sponsored by Novartis Farma through in-kind support services from Burson-Marsteller Brussels.

5th European Symposium on Rare Anaemias

1st Italian Thalassaemia Meeting for Patients and Health Professionals

November, 2013. ENERCA, the Italian Federation of Associations for Thalassaemia and Sickle Cell Disease (UNITED) and the Thalassaemia International Federation (TIF) organized the 5th European Symposium on Rare Anaemias and 1st Italian Thalassaemia Meeting for Patients and Health Professionals. Read the Presentations of this a unique chance to access up-to-date knowledge and work in a transversal environment.

ENERCA Recommedations: Sickle Cell Disorders - Haemoglobinopathies

A collaborative effort within the ENERCA3 WorkPackage 4 led by Dr. Béatrice Gulbis

November, 2013. The objective of this document is not to duplicate existing guidelines but to collect from the ENERCA partners the guidelines already available and produce a review recommendation compiling all the expertise in the field.

I Congreso Nacional de Anemias Raras y Síndromes Relacionados

The Spanish National Congress for rare anaemias and other syndromes

September, 2013. Download the Congress presentations (in Spanish) addresing the latest advances in the diagnosis of hemoglobinopathies and other rare anemias, the clinical management of severe hemoglobinopathies, as well as all aspects related to the prevention and treatment of rare anaemias such as iron overload and management of chelating agents, the use of drugs or gene expression biological modifiers, and stem cell transplantation.

The Curriculum in Iron Metabolism & Related Disorders

A Programme led by the European School of Haematology (ESH)

The Curriculum in Iron Metabolism & Related Disorders

September, 2013. An activity designed for haematologists, medical oncologists, haematology-oncology specialists, and other healthcare professionals involved in the screening, evaluation, treatment, and management of adults and children with iron overload, resulting from the spectrum of chronic iron overload diseases.

3rd Pan-European Conference on Haemoglobinopathies & Rare Anaemias

Download all the presentations of the ENERCA Sessions

Joan Lluis Vives-Corrons & María del Mar Mañú Pereira

Ocober, 2012.On addition of being among the organizers of the 3rd Pan-European Conference, ENERCA was on the center of attention during two dedicated sessions.

Diagnosis and Management of very rare anaemias: a challenge

Watch online all the presentations of the ESH-ENERCA Conference

ESH-ENERCA Conference

February, 2012.This course, jointly organized by ESH and ENERCA, aims at promoting harmonization of procedures for clinical and biological diagnosis, as well as management and follow-up of patients with very rare red cell disorders.

2nd European Hemoglobinopathy Forum - Bio-Rad

Insights on the diagnosis of hemoglobin disorders

November, 2011. The 2nd European Hemoglobinopathy Forum, organized by Bio-Radis, is a discussion forum about state of the art of hemoglobinopathies in Europe.

4th European Symposium on Rare Anaemias

1st Spanish Thalassaemia Meeting For Patients And Health Professionals

November, 2011. The 4th European Symposium on Rare Anaemias is an activity of the ENERCA project which aims to inform colleagues and stimulate interest on the subject of congenital and rare anaemias which constitutes today a health care concern of significant proportions.

12th International Conference on Thalassaemia and the Haemoglobinopathies

14th TIF International Conference for Patients and Parents

12th International Conference on Thalassaemia and the Haemoglobinopathies

May, 2011. More than 1300 participants from over 50 countries, across 5 continents gathered in Antalya (Turkey) to witness the most successful conference on thalassaemia and the haemoglobinopathies by far organised by the Thalassaemia International Federation until now.

Haemoglobin Disorders: Laboratory Diagnosis and Clinical Management

ESH-Enerca training course in association with Thalassaemia International Federation

ESH-Enerca Training Course: HAEMOGLOBIN DISORDERS: Laboratory Diagnosis and Clinical Management

April, 2011. Sickle cell disease, thalassaemia and other haemoglobin disorders are among the most frequent inherited pathologies worldwide, but until relatively recently they were considered to be rare red cell disorders in European countries.

Sickle Cell Disease International Course

The Medical Virtual University of Monaco (UMVM)

Medical Virtual University of Monaco

This continuous course is intended to act as an educational tool for health care personnel who have many responsibilities, limited resources but are still facing a large number of patients.

3rd European Symposium on Rare Anaemias

1st Spanish Thalassaemia Meeting For Patients And Health Professionals

November, 2010. The 3rd European Symposium on Rare Anaemias is an activity of the ENERCA project which aims to inform colleagues and stimulate interest on the subject of congenital and rare anaemias which constitutes today a health care concern of significant proportions.

Innovative therapies for red cell and iron related disorders

ESH-EHA Course in association with Enerca

April, 2010. The EHA-ESH Scientific Workshop “Innovative Therapies for red cell and iron related disorders” organized in collaboration with ENERCA took place in Cascais, Portugal, April 16-18, 2010. The aim of the workshop was to discuss recent and original data that may result in new therapeutic strategies for red cell and iron metabolism disorders.

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Co-funded by the Health Programme of the European Union.