Under the name of ENERCA http://www.enerca.org, a network co-funded by the European Commission through its Public Health and Consumer Protection Directorate (DG SANCO), PHEA programme, we would like to invite you to participate in a European survey.
In view to contribute to the empowerment of patients with rare anaemias, one of our objectives is the mapping of existing centres that take care of patients with rare anaemias in Europe. Another goal is to obtain a directory of facilities available per centre for patients with rare anaemias. There is no question of a trial but rather an overview of the current situation. This inventory will allow the formation of new networks, an exchange between centres within a country but also between European countries. A rare disease in one European country may be more frequent in another. The expertise will be appreciated and prompt collaboration might start.