News

A video to explain Paroxysmal nocturnal hemoglobinuria

The video in Spanish includes testimonials from patients and health professionals

August 14, 2014

The Spanish Paroxysmal nocturnal hemoglobinuria association (HPN) has edited a video in Spanish to explain this rare disease and its treatment with Eculizumab. The video includes testimonials from patients and health professionals, including Prof. Joan Lluis Vives-Corrons, Coordinator of ENERCA. 

Watch the video and learn more about Paroxysmal nocturnal hemoglobinuria (PNH). Even though the stories shown refer to a singular disease, the fears and worries expressed by patients and families are universal to all rare diseases. Watch the shocking testimonials and learn about the ongoing fight against PNH.

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