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EURORDIS launches a questionnaire about difficulties accessing treatment

ENERCA encourages you to share your experience through the EURORDIS questionnaire

July 30, 2014

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond. With the aim to capture access difficulties accessing treatment, including medicines, medical devices, surgeries, or medical consultations, EURORDIS is gathering patient experiences through an online questionnaire. Results will be analysed by trained staff and communicated to national and European-level Health Authorities in order to move toward finding solutions to problems with access.

ENERCA encourages you to share your experience through the EURORDIS questionnaire. It is available in different languages.

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