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Read the presentations of the 5th European Symposium on Rare Anaemias

The Symposium was completed with the 1st Italian Thalassaemia meeting for patients

December 15, 2013

5th European Symposium on Rare Anaemias

The 5th European Symposium on Rare Anaemias joined in Ferrara (Italy) 200 attendants, including patients and experts. Now you can access most of the presentations through the ENERCA website. The event, celebrated in November 15th – 16th, is an activity to disseminate up-to-date knowledge on rare anaemias and, at the same time, increase their awareness. Its organizers were the European Network for Rare and Congenital Anaemias (ENERCA); the Italian Federation of Associations for Thalassaemia and Sickle Cell Disease (UNITED); and, the Thalassaemia International Federation (TIF).

The European Symposiums on Rare Anaemias are a perfect environment for interaction among patients and experts. With 27 speakers in its last edition, these activities join the efforts of the main experts in the field and facilitate networking. As in other rare diseases, the recognition of expert centres, promotion of best practices and education and training of multidisciplinary health professionals teams are basic in order to serve patient needs, both in diagnosis and case management. 

Patients are always at the heart of ENERCA policies and the Symposium organizers, and that is the reason why the 1st Italian Thalassaemia meeting for patients was also celebrated during the 5th Symposium. An interactive session between patient, panellists and doctors focused not only on clinical management, but also on prevention and social action issues for thalassaemia and haemoglobinopathies.

You can view most of the presentations in the Training section of the ENERCA website. 

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