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ENERCA will share 10 years of experience at the 3rd Pan- European Conference on Haemoglobinopathies and Rare Anaemias

During this event organized by TIF, ENERCA will present the White Book and other results after 10 years of experience

October 1st 2012

3rd Pan- European Conference on Haemoglobinopathies and Rare Anaemias

The Thalassaemia International Federation organizes the 3rd Pan- European Conference on Haemoglobinopathies and Rare Anaemias, to be held in Limassol (Cypruss) on 24 – 26 October 2012. In the context of this important scientific conference in the field of Haemoglobinopathies, ENERCA will be at the heart of the debate in two sessions devoted to its 10 years of experience. The main achievement to be presented will be the White Book for the creation of a European Reference Network (ERN) of Centers of Expertise in Rare Anaemias (RA).

After 10 years, ENERCA is one of the most experienced network in the field of Public health in Europe. During the 3rd Pan- European Conference on Haemoglobinopathies and Rare Anaemias different members of the ENERCA network will talk about the results and the achievements of this joint effort. The ENERCA White Book is one of the most precious advances, intended to be a milestone in the process of reducing patient’s health inequalities across Europe and a friendly user tool for other rare diseases ERNs.
 
Besides of approaching aspects of rare anaemias such as diagnosis, treatment and training, the ENERCA sessions will discuss about cross border health care and patient’s rights. The objective of offering an equal access to health services across all European countries raises practical challenges that are still not solved. When it comes to rare diseases such rare anaemias, the mobility of citizens between countries to access the best available treatments becomes especially relevant.

The participants of the 3rd Pan- European Conference on Haemoglobinopathieswill work on these aspects of rare anaemias, and many more, in an event open to patients and patient organisations, healthcare professionals, academics, researchers, policy-makers and industry.

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