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Watch the EURORDIS "Rare but strong together event" videos

The Rare Disease Day included participation from 56 countries

March 28th 2012

Rare Disease Day 2012

On February 29th EURORDIS celebrated the Rare Disease Day, a global event that included participation from 56 countries. The “Rare but strong together event” was celebrated in Brussels, with the participation of meaningful voices in the field of rare diseases.

The videos from this interesting event are now available Online. The following one includes a presentation of ENERCA by Dr. Joan Lluis Vives-Corrons, ENERCA Coordinator and rare anaemias specialist from IDIBAPS - Hospital Clínic of Barcelona, and Chris Sotirellis, from the UK Thalassemia Society, starting on minute 41:

Video Library:

Watch live streaming video from eurordis at livestream.com

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 502 rare diseases patient organisations in over 46 countries.

European Symposium “Rare but Strong Together”on Feb 29. Venue: Centre de Presse International (IPC), Résidence Palace, Rue de la Loi 155, Brussels, Belgium

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