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Coming next: Rare Disease Day

All over the world, rare disease patient organisations and their partners will join forces to promote awareness about rare diseases

February 15th 2012

EURORDIS Rare Disease Day

February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organising awareness-raising activities converging around the slogan “Rare but strong together”.

All over the world, rare disease patient organisations and their partners will join forces to promote awareness about rare diseases and the millions of people affected by them. The campaign started as a European event in 2008 and has progressively become a world event, with 56 countries participating in 2011, including all EU Member States, Croatia, Russia, Georgia, United States, Canada, Japan, China, Australia, Brazil and many others.

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.  In 2012, Rare Disease Day will put the spotlight on “Solidarity”, a value that characterises the rare disease patient movement across diseases and national boundaries. The theme also serves to focus on the importance and the need for collaboration and mutual support in an area where patients are rare, expertise is scarce and people affected face similar challenges.

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