March 24, 2017
Rare Lives is a photographic journey with the aim to investigate needs, hopes, difficulties, but above all, joys and daily achievements of those living a "Rare Life".
Rare Lives project wants to give people living with a rare disease visibility and strength, raising awareness and attention of the citizenship on rare diseases through the construction of a network which combines the experiences of those living the condition of rare patient and those who are not.
70 families have contributed to Rare Lives project, developed in 7 European countries together with UNIAMO F.I.R.M onus and with the support of Sanofi Genzyme.
Aldo Soligno, the Photographer of the project, has been awarded last February with the EURORDIS Media Award.