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Orphanet releases its new website celebrating its 20th anniversary

Orphanet new site facilitates navigation, reading and searching with its new design

March 10, 2017

Orphanet was established in France by the INSERM (French National Institute for Health and Medical Research) in 1997 with the aim to provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. Orphanet became a European endeavour from 2000, supported by grants from the European Commission.

Over the years, Orphanet has become the reference source of information on rare diseases, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases, with the aim to:

  • Improve the visibility of rare diseases in the fields of healthcare and research by maintaining the Orphanet rare disease nomenclature (ORPHAnumbers): providing a common language to understand each other across the rare disease field.
  • Provide high-quality information on rare diseases and expertise, ensuring equal access to knowledge for all stakeholders: orientating users and actors in the field in the mass of information online.
  • Contribute to generating knowledge on rare diseases: piecing together the parts of the puzzle to better understand rare diseases.

This year, celebrating its 20th anniversary, Orphanet has enveiled its new website with an easier navigation, reading and searching options and responsive design. Check it out in www.orphanet.net !

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