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European Year for Rare Diseases 2019: Vote and make a difference!

The Campaign for a European Year for Rare Diseases 2019 has started

July 14, 2015

European Union (EU) selects every year a specific topic with the aim to raise awareness and encourage dialogue and debate, sending a strong political message of commitment from the member governments and EU institutions.

2019 will be an important year for rare disease community due to the 20 years anniversary of orphan medicines policy at European and national level, and the 10 years anniversary of EU rare disease actions within EU Commission policies and in EU member states.

There is no doubt that increasing awareness will encourage policymakers to pay the attention needed to make rare diseases a public policy and budget priority and will also inspire researchers to focus more on rare diseases.

Getting as many signatures as possible is essential to support the nomination of 2019 as the European Year for Rare Diseases! Be part of the European rare disease movement and help to ensure rare diseases a continuous public health priority.

Click this link and make a difference!

 
 

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