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EURORDIS Awards 2015 for Excellence in the Field of Rare Diseases

EURORDIS presented last 26th February its 2015 Awards for Excellence in the Field of Rare Diseases at Black Pearl Gala Dinner

March 18, 2015

The European Organization for Rare Diseases (EURORDIS) presented last 26th February its 2015 Awards for Excellence in the Field of Rare Diseases. The ceremony was held in Brussels, at the EURORDIS Black Pearl Gala Dinner, a fundraising event in support of people living with a rare disease.

The EURORDIS Awards recognize the contribution of patients’ associations, caregivers, volunteers, scientifics, media and companies that are indispensable to create solutions for the daily fight of living with a rare disease and to transform the individual experiences around the world into collective actions. This year, Princess Astrid of Belgium and Rare Disease Day Ambassador Sean Hepburn Ferrer were present in the Gala Dinner and Ceremony.

"Rare Disease Day 2015 recognises the millions of families, friends and carers whose daily lives are impacted by rare diseases and who are living day-by-day, hand-in-hand with people living with a rare disease. We are honoured to have awarded this year's winners in recognition of the work they do as patient groups, researchers, rare disease patient advocates, volunteers and leaders to support anyone who is affected by or living with a rare disease." stated Yann Le Cam, Chief Executive Officer of EURORDIS.

The awards presented this year were given to: Ms Abbey Meyers (Lifetime Achievement Award), Professor Josep Torrent-Farnell (Rare Disease Leadership Award), Mrs Glenis Willmott (Policy Maker Award), Ms Rosa Sánchez de Vega (Volunteer Award), Mr Peter O'Donnell (Media Award), Children with SMA (Patient Organisation Award), Professor Kate Bushby (Scientific Award) and Pfizer's (Company Award).

Find further information about each awarded here and pictures of the gala dinner in the EURORDIS Flickr page.
 

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