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The new ENERCA e-Health Services were presented in the 4th Pan European Conference on Haemoglobinopathies & Rare Anaemias

The scientific programme covered a session focused on Rare Anaemias that included an interactive discussion of clinical cases.

November 24, 2014

ENERCA participated in the 4th Pan European Conference on Haemoglobinopathies & Rare Anaemias held in Athens last 7-9 November 2014 in Athens. This Conference was organized by TIF in collaboration with the Greek Thalassaemia Federation (EOTHA), and was held under the auspices of the Hellenic Society of Haematology and the Greek Ministry of Health. It was brought together stakeholders from 28 Member States to discuss avenues of action, to tackle health inequalities across the EU and the growing public health burden of chronic and rare diseases in Member States. A particular focus was given to patient empowerment as well as new and upcoming policies that are directly or indirectly related to health and quality of life.


Prof. Joan Lluis Vives Corrons, coordinator of the ENERCA network presented the Recommendations for Centres of Expertise in Rare Anaemias which can be found in the ENERCA White Book, soon available in the ENERCA website. Representative of the European Commission- DG-SANCO, Mrs. P. Nenova, presented the Status of EU policies on rare diseases (haemoglobinopathies), especially for the future recognition of the European Reference Networks (ERNs) and highlighted the 10 years of life of ENERCA project.


The scientific programme also covered a session focused on Rare Anaemias that was organized by ENERCA and chaired by the partners, Dr. Patricia Aguilar Martinez and Prof. Béatrice Gulbis, who presented the e-learning and Telemedicine platforms that are currently being developed in e-ENERCA project. Furthermore, an Interactive Clinical Cases Session was also organized in order to give professionals and patients the opportunity to present their case and discuss it with the experts chairing the session.

 

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