Agenda

Policy Discussion Meeting: Faster Access to Medicines for Rare Disease Patients

February 26th 2013

Brussels, Belgium

Organized by:

EURORDIS and Members of European Parliament Ms Antonyia Parvanova (Bulgaria) and Mr Cristian Silviu Buşoi (Romania)

Location:

In line with the 2013 Rare Disease Day campaign “Rare Disorders without Borders”, a multi-stakeholder policy event will examine how different policy measures can help improve access to therapies for rare diseases. The need for transparency around pricing and reimbursement of medicinal products in order to allow faster, more equitable access to medicines for patients will be discussed in the context of the EU Transparency Directive on medicinal products, ahead of the upcoming vote in plenary session of the Parliament.

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