Agenda

Rare Disease Summit 2015

March 27-28, 2015

Melbourne, Australia

Organized by:

Organized by Rare Voices Australia

Location:

16 The Esplanade, Novotel Melbourne St Kilda, St Kilda, VIC, 3182

The Rare Disease Summit 2015 aims to showcase current initiatives to progress a National Plan for Rare Diseases.
The principal goal of a National Plan is to drive coordinated and collaborative action among stakeholders to address important, common needs and concerns of people living with a rare disease.
The focus is people's experience of the health care system across Australia. The desire is for more equitable access to appropriate services, and to narrow the gap between how people with a rare disease experience the health system compared to people who also experience complex but more common health conditions.
Over two days, attendees of the Summit will listen to and engage with experts in these four focus areas of Rare Diseases. Interested delegates will include Clinicians, Researchers, Industry Executives, Health System Planners, Health Policy makers, and Leaders of Patient Organisations.

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