Agenda

Rare Disease and Orphan Drug Registries, 2nd International Workshop

21-22 October 2013

Rome, Italy

Organized by:
EPIRARE (European Platform for Rare Disease Registries)
Location:
Italian National Institute of Health – Viale Regina Elena, 299 - Rome (Italy)

It is open to scientists, clinicians, patients’ and parents’ Associations, policy makers and enterprises. The main aims of the workshop are: to share different experiences in the registration of rare diseases, including rare cancers and malformations, in Europe and beyond; to highlight the strengths and opportunities of linking rare disease registries and other platforms being developed for research; to promote networking of registries and contribute effectively to the strategies for the implementation of the common EU Platform for rare disease registries.

Register online - closing date 31 July 2013 

Submit your abstract online - closing date 15 July 2013

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