Agenda

EpiRare International Summer School: "Rare Disease and orphan drug registries"

16-20 September 2013

Rome, Italy

Organized by:

EPIRARE (European Platform for Rare Disease Registries)

Location:

Italian National Institute of Health – Viale Regina Elena, 299

The course will take the participants through the main concepts and practical steps that must be undertaken in the establishment and management of a rare disease registry to ensure its usefulness, soundness and sustainability.

30 July 2013 - deadline for application submission

Related information

Copyright © 2002 - 2017 Enerca

Co-funded by the Health Programme of the European Union.