Objectives and Impact

ENERCA main objectives include:

The establishment of a European Reference Network in rare anaemias.
The preparation of a comprehensive catalogue for external quality assessment of procedures for the diagnosis of rare anaemias.
A better knowledge of the status of rare anaemias in the Member States through comparable epidemiological European data.
The publication of guidelines for the harmonisation of diagnostic and/or therapeutic procedures in rare anaemias.
An increase in health professionals’ knowledge of rare anaemias (training courses and symposiums).
Increased social awareness of rare anaemias by means of educational material in the relevant languages.
The promotion of research activities in rare anaemias

The main benefits of a European Reference Network of Expert Centres in rare anaemias will be:

Easy access to expert centres throughout the European Member States.
Comparable data on patients suffering from rare anaemias, and epidemiological surveillance throughout Europe.
Establishment of common treatment protocols and dissemination of information about rare anaemias to improve the awareness of these rare diseases among health professionals and the general public.

Enerca is a project in the Health Programme 2008 of the European Commission.