Useful Links
Here we have listed websites that we think could be of interest from various countries. These may be related to support groups, journals and other useful information on anaemias, rare diseases, haematology, etc. If you know of any other sites which would be of interest, please let us know.
If you are looking for country specific information, try looking in patient associations and /or expert centres.
Patient Support
American Society of Haematology
Cooley's Anaemia Foundation
Childhood anaemia
European Porphyria Initiative
Fanconi Anemia Research Fund, Inc.
Foundation Groupama
Kids Health for Parents (español)
The Sickle Cell Information Center
The UK Thalassaemia Society
Haematology
American Society of Haematology
American Society of Pediatric Hematology and Oncology
Anemia Institute
Asociación Española de Hematología y Hemoterapía
Associazione Italiana Ematologia Oncologia Pediatrica - AIEOP -
BCSH Guidelines
Club Du Globule Rouge et du Fer
emedicine
EuroBioBank
European Hematology Association
Fanconi Anemia Mutation Database
International Society of Hematology
International Society for Laboratory Hematology
Societé Francaise d'Hematologie
The European School of Haematology (ESH)
Newborn Screening
Société française d'hématologie (SFH)
Club du globule rouge et du fer (CGRF)
Journals
Blood
British Journal of Haematology
Haematologica-The Hematological Journal
Journal of Pediatric Health Care
Laboratory Hematology
Rare diseases
EURORDIS
Federación Española de Enfermedades Raras (FEDER)
Orphanet
National Organization for Rare Disorders (NORD)
Diamond Blackfan Anemia Registry, USA
National Organization for Rare Disorders, USA
http://rarediseases.about.com/cs/blackfandiamond/a/072002.htm
Porphyria Europe
Congenital Bone Marrow Failure Syndromes in German
Inherited Bone Marrow Failure Syndromes in English
Other
Hospital Clinic
http://www.idibaps.ub.edu/cat/home.php
Merck Manuals Anaemias
WHO
National Swedish Board of Health and Welfare, Sweden.
The Roche Foundation for Anaemia Research (RoFAR)
www.nhlbi.nih.gov/health/
www.fda.gove/bbs/topics/NEWS/2007/NEW01589.html
Regional Associations of Schools of Public Health
APACPH - The Asia-Pacific Academic Consortium for Public Health
ASPH - The Association of Schools of Public Health in the European Region
ALAESP
World Federation of Public Health Associations
UN Organisations
WHO Headquarters
WHO Regional Office Europe
WHO Employment
WHO Centre for Health Developement in Kobe
PAHO Pan American Sanitary Bureau, Washington D.C., USA
UNDCP United Nations Drug Control Programme, Vienna, Austria
UNDP, United Nations Development Programme Sustainable Human Development
UNESCO United Nations Educational, Scientific and Cultural Organization
UNESCO, The International Bioethics Committee
World Bank
European Institutions
Presidency of the European Union
European Parliament
EUROPA: Web site for all the official european institutions and services. Official Journal, Treaties, Legislation (Eur-Lex server
Council of Europe
EU Ministry of Health
Austria
France
Latvia
Portugal
Belgium
Germany
Lithuania
Slovakia
Cyprus
Greece
Luxembourg
Slovenia
Czech Republic
Hungary
Malta
Sweden
Danemark
Italy
Netherlands
Spain
Estonia
Ireland
Poland
United Kingdom
Finland