Useful Links

Here we have listed websites that we think could be of interest from various countries. These may be related to support groups, journals and other useful information on anaemias, rare diseases, haematology, etc. If you know of any other sites which would be of interest, please let us know.

If you are looking for country specific information, try looking in patient associations and /or expert centres.

Patient Support

American Society of Haematology
Cooley's Anaemia Foundation
Childhood anaemia
European Porphyria Initiative
Fanconi Anemia Research Fund, Inc.
Foundation Groupama
Kids Health for Parents (español)
The Sickle Cell Information Center
The UK Thalassaemia Society

Haematology

American Society of Haematology
American Society of Pediatric Hematology and Oncology
Anemia Institute
Asociación Española de Hematología y Hemoterapía
Associazione Italiana Ematologia Oncologia Pediatrica - AIEOP -
BCSH Guidelines
Club Du Globule Rouge et du Fer
emedicine
EuroBioBank
European Hematology Association
Fanconi Anemia Mutation Database
International Society of Hematology
International Society for Laboratory Hematology
Societé Francaise d'Hematologie
Newborn Screening
Société française d'hématologie (SFH)
Club du globule rouge et du fer (CGRF)

Journals

Blood
British Journal of Haematology
Haematologica-The Hematological Journal
Journal of Pediatric Health Care
Laboratory Hematology

Rare diseases

EURORDIS
Federación Española de Enfermedades Raras (FEDER)
Orphanet
National Organization for Rare Disorders (NORD)
Diamond Blackfan Anemia Registry, USA
National Organization for Rare Disorders, USA
http://rarediseases.about.com/cs/blackfandiamond/a/072002.htm
Porphyria Europe
Congenital Bone Marrow Failure Syndromes in German
Inherited Bone Marrow Failure Syndromes in English

Other

Hospital Clinic
http://www.idibaps.ub.edu/cat/home.php
Merck Manuals Anaemias
WHO
National Swedish Board of Health and Welfare, Sweden.
The Roche Foundation for Anaemia Research (RoFAR)
www.nhlbi.nih.gov/health/
www.fda.gove/bbs/topics/NEWS/2007/NEW01589.html

Regional Associations of Schools of Public Health

APACPH - The Asia-Pacific Academic Consortium for Public Health
ASPH - The Association of Schools of Public Health in the European Region
ALAESP
World Federation of Public Health Associations

UN Organisations

WHO Headquarters
WHO Regional Office Europe
WHO Employment
WHO Centre for Health Developement in Kobe
PAHO Pan American Sanitary Bureau, Washington D.C., USA
UNDCP United Nations Drug Control Programme, Vienna, Austria
UNDP, United Nations Development Programme Sustainable Human Development
UNESCO United Nations Educational, Scientific and Cultural Organization
UNESCO, The International Bioethics Committee
World Bank

European Institutions

Presidency of the European Union
European Parliament
EUROPA: Web site for all the official european institutions and services. Official Journal, Treaties, Legislation (Eur-Lex server

· Health & Consumer protection, Directorate General
· Education, training, Youth
· Research: Directorate General of the European Commission responsible for Science, Research and Development
· Environment Directorate General
· External relations: Directorate General of the European Commission responsible for External Relations Europe and the New Independent States Common foreign and Security Policy
· CORDIS, Community Research and Development Information service Provides information on all research and technological development activities in the EU through a complete collection of databases.
· EUR-OP NEWS
· EUROSTAT, Statistical Office
· Information Society Directorate General

Council of Europe

EU Ministry of Health

Austria
France
Latvia
Portugal
Belgium
Germany
Lithuania
Slovakia
Cyprus
Greece
Luxembourg
Slovenia
Czech Republic
Hungary
Malta
Sweden
Danemark
Italy
Netherlands
Spain
Estonia
Ireland
Poland
United Kingdom
Finland